07/2026 - Thursday the 23nd - MY JOURNEY

 

Today's Name Day:  Emma , Emmy

I had a nurse boss at the hospital named Emma.  I will always be grateful to her for her support when my son needed several surgeries on his eyes in Kansas City.  Several of my coworkers accused me behind my back of lying & faking.  I have gone a long long time without support from others.  They lady who drew my blood yesterday was named Emme.  I like that name.   I a girl in school named Emma.

    Today is ok.  Still pain when I walk.  Both hands/wrists started hurting over night.  Happens at night often.  Maybe holding my phone causes some of it,

    Had rain overnight.  One crash of thunder woke me up.  Got 0.68 inches of rain.  More forecast for later.

    MM & I have chatted.  No one else has asked how I am.  There is a birthday celebration outside after 5pm today.  I pretty much told them I was not going.  I hate being outside with bugs, humidity, possible rain, & continued pain.  No one understood but tried to talk me out of not being there.  Not heard anything from anyone.  Only MM.  And he always asks if I need anything.  Almost the only one who does.  KN does also.  Others who should never ever do.  Ignored & forgotten.  I cannot give enough to get support.  😔

    Kids stayed close last night.  Daisy was loving today.

    I ordered some plastic lids for liquid canned drinks.  They fit my orange soda cans perfectly.  My V8 Energy drink not at all.  If I put a thin piece of tissue paper on the can then the lid they ALMOST fit.  They look the same.

    My Sjögrens is bothering me.  My skin itches sooo much.  Then I remembered I have some lotion that makes my skin feel good but also stops the itch.  My back is the worst.. Used it last night in bed.  Oh, it feels so nice.

    Today is a day of rest.  Offered to take JR to see the big steam engine in Salina.  He said no.  At least I offered.

    Cool out today.  Have some heat on but think I can turn it off.  Will nap on the sofa or bed.

    Hope my knee is better tomorrow but if I feel shaky doing basement steps I am staying home.  Scares me.  And hope all understand, even if they say nothing.  I have to fight down my guilt.

    More tomorrow.

                                                                         

               

    

07/2026 - Wendesday the 22nd - MY JOURNEY

 

Today's Name Day:  Magdalena , Madeleine

I remember a pastor's wife who was named Madeleine.

    Today was an interesting day.  Met my new RA doctor.  Name is Dr. Baxa.  He has no set office.  He travels to many cities & has patients in each one.  I liked him.  Good personality.  And he was thorough.  I made mention that in Wichita they said my Sjögren's was never tested.  He said they did include it in some lab work & I do have it.  I have all the symptoms of it.  No fun.  He felt all my joints but the last few days have been low pain days.  Would make a difference.  He ordered a boat load of xrays & lab.  But it was lunch time so they called no one so I could go eat.

    I have had RA for around 5 years.  I have never  had some of the treatments I am clueless about.  Not as sick as many people on the RA groups I am part of.

    I had lunch at the Sale Barn.  MM was working so we did get to talk a bit.  Miss him.  No one there for me to sit with.  No problem.  I would be shocked if there was someone there who wanted to sit with me.

    Back at the hospital things got busy.  I had a total of 11 xrays --- fingers/hands in different positions,  left leg/knee & left hip.  Those hurt.  I almost cried.  Then on to lab.  They drew 6 tubes of blood.  Then.  I got to go home.  I showed the lab girl the vein that is the best but she tried a different one.  Then had to stick me in the good one.

    The lady who came to get me for xray asked if I wanted a wheel chair.  And I did.  The little waiting room, xray, & lab are miles away.  I will remember.

    When I got back from lunch I saw Willie's sister was in the waiting room.  She hated Willie, their brother, & me.  She was really busy on her cellphone.  She has no friends so probably gossiping about me to my kids & her grandson.  Big deal.  I could care less.  At least she has not treatened to hurt me physcally for a few years.  What a dysfunctional family we are.

    Came home & took a nice nap.  I managed to twist my knee getting in the booth for lunch.  I almost died.  Still sore now.  And probably tomrrow too.  Cancelled today & tomorrow.

    I wanted to sit out with Daisy but just needed my sofa.  Try tomorrow.  I hate to be outside.  Flies, mosquitos, etc.  And heat & humidity.

 I had no idea,

 

I have 3.  One at work on my desk.  One near my sofa.  And one next to my bed.

My best friend JS not wanting his photo taken..  Love him.

Red Barn Studio.  Worked there for 5 years or more.

Sale Barn.

Wild flowers in my driveway,

Church in Sweden I think.

Church in Sweden.  One of my faves.

Old car in my town.

                                                                            

                                

07/2026 - Tuesday the 21st - MY JOURNEY

 

Today's Name Day:  Johanna

Went to school with a Johanna.  Her dad was a professor at the college.  Last time I saw her was our 50th class reunion.  She died shortly after that of cancer.

    Today is just a day like any other.  Had an email from JL.  Losing a friend who is moving away.  Sad.  Hate to lose someone I really like.  But it has to be. 

    A little cooler today.  Temp is 96F now.  Not close to 100F.  Still feels miserable out.  Nice breeze.

    Tried to take a nap but only rested.  Gave up & showered & shampooed.  Want to look good for the new doctor tomorrow.  I do not want to eat too early.  But still need lunch after I see him.  See how I am feeling after lunch.  Today my one wrist is killing me.  Worse tomorrow???  And I need to see MM sometime.  And need to stop in to see my insurance people.  Raised my payment at least $1000.  Good lord!!!  Wonder if it can be changed to less??  How can I afford that??  More & more stress.  But others expect lots from me.  But I get little back.

    And my stress messing my life up!  I hate nights when I turn my lights off & my blind symptoms take over.  I hate when I cannot see my bedroom door or the hallway.  And parts of my room disappear.  Oh, well..  I think no one cares about it all.  Still no support group.

    Will end this and work on spanish.  Not much energy for that.

Fave photo

So true

Miss this weather

Harvest when I was included