Showing posts with label RA. Show all posts
Showing posts with label RA. Show all posts

Friday, August 8, 2025

08/2025 - Viernes the 08th - JOURNEY

 






Today's Name Day:  Silvia, Sylvia
The Swedish queen is Silvia.  Mom was friends with a Sylvia.

    Still sickly.  No more stomach problems but lots of RA things.  I can walk but not stand up straight like I should.  Called in sick at work.
    I mostly rested.  Email from one friend.  Few texts from MM.  Chatted with AP at work.  Miss him & LL.  That was my day.  Mostly no support from anyone.  I am abandoned.
    Super hot today.  I saw 104F here.  Same for tomorrow.  I will make it to work tomorrow.  No choice.  Filling in for someone.  Can park close.  Might skip supper & just go home.
    TV sucks today.  ICT had some teens get in a shooting fight at a mall so that was on often.  I don't live there.  Don't care.  Found some taped shows I am watching.
    Photos are mostly flowers.  All from a site of free photos for anyone to use.














Dreaming........



















Saturday, February 18, 2023

18 february, 2023 Wandering & Capturing Moments

    Had a quiet day.  Just stayed home.  Had planned on supper out, but my stomach was not well.  Hopefully ok tomorrow.

    I felt too cold all day.  Got in the 40s.  Stayed too warm last night, but much cooler tonight.  Warmer tomorrow.  Even the weathermen are mentioning spring.  I no longer am saying what weather I like.  I have given up.  And we had strong winds today.  Toppled one trash bin.  Not much in it.

    Last night JS & I had a video chat.  Miss him so much.  Good to see him happy with no stress.  He showed me his new cat friend that follows him everywhere & a new aquarium.  Gorgeous.  Had a good conversation.

    My cousin & friend called me last night also.  We talked for about 2 hours.  We both have similar health issues.  Good to talk someone who understands & cares.  Rare for anyone with chronic diseases.  We need to chat more often.  I have found a RA group on FB.  They are nice.  And said anyone can vent if they need.  I will try not to abuse that.

    Cinder is getting to be more of a house cat daily.  She was in all last night.  Snuggled up next to me.  Kisse is getting jealous.  She snuggles for attention when Cinder is outside.

    Last night Nico was totally out of control.  He was into anything that did not run from him.  What a mess.  He does not listen or mind.  I was sooo stressed.  He started again tonight but gave up early.  Sleeping now.

    Photos are some local ones again.  First photo is a family grouping photo.  Second photo is Willie & his last dog, Jo.  We had Nico & Jo at the same time.  Third photo is my neighbour's barn, my fave.  I edited the sky.

                        















Tuesday, August 2, 2022

02 august, 2022 Wandering

    A quiet day.  I got up early to go vote.  I really have no good feelings about this vote.  Too many old men want to be in charge of all women's lives & bodies.  And too many women who think it is great.  We could be screwed.  Trying to be positive.  Very difficult.

    I decided to take notes on having RA.  For my own information.  There was an article on itching.  I have that almost all the time.  No rash, just itching.  And eczema on my palms.

    There was an article on grief.  Having RA does cause grief.  So does any long term disease.  And I know of no one who understands.  Or cares.  As a nurse I know the stages of grief & I am not done with them yet.

    Another long article was on how to help someone with RA.  I ask my brother but I hate to.  I do not want to be a bother or a rock around someone's neck.  I seem to either do it myself or it does not get done.  And there is no one who just asks what they can do or what I need.  Again, I do it myself.

    My house is a mess.  I did not used to be a mess but with a crappy marriage, etc. things happen.  I am not perfect but not my house is a mess because when I hurt nothing gets done.  And there are days I really do not give a f**k.  Such is life.

    Another couple of articles are on things to stop doing & things people should not say to someone who is not well.  A week ago when we went out to eat a close friend asked why I did not feel good.  I explained my hip & back hurt a lot.  He laughed & made a joke.  I was not joking.  A simple hand on my shoulder & a kind comment would have helped.  Probably will keep my mouth shut next time.  Any time I feel bad there is no one who shows any empathy.

    One article mentioned a close friend & what I could say to them or ask them to help with.  Or what they could offer me.  Well, I have no close friend anywhere near here.  That made me cry.  I miss having lady friends to be with, whether they would care or not.  I think the loneliness is the absolute worst.  And there again, no one cares.  As if life is not difficult enough.

    And one important article was on negative self talk.  I am the Queen of negative self talk.  After my childhood & then my adulthood it is ingrained in me.  I rarely think anything good will happen as it almost never does.  I am not jealous of anyone else but sometimes seeing all others have hurts.  Like I never wanted good things & people & family.  My therapist had it right.  She said I feel like I have been punished my entire life for something I did wrong.  No idea what.  I used to pray (beg) for forgiveness but that did nothing.  Prayer does not work.  I am still being punished.  Or feel like it.

    The weather is beyond awful.  There are clouds that look rather dark but no rain anywhere near.  Chance of rain later but as usual we will miss out.  When I went to vote I got home around noon.  It was 100F then.  At least the humidity is around 25%.  The high got to 103.6F.  Worse tomorrow.  Glad to stay home.

    Not seen Cinder all day.  Hopefully she will turn up soon.  I always worry.

    Photos are some I like.









                        

                

Sunday, June 5, 2022

05 june, 2022 Wandering

    Today was anything but good.  Rain & flooding last night.  Water splashed on me walking by my AC unit.  I assume it was coming from the roof into the AC unit.  Called my nephew & he checked it out & went to town & got tar & hopefully fixed it.  But I usually have only bad luck  Sometime in the future I will have to have my carpet removed & the floor repaired.  It is always something but never something fun.

    I got next to no sleep last night.  Stormed most of the night.  Did not get a huge amount of rain though.  Storms are approaching again now.

    I did have a nice nap.  I might as well never try to sleep.  Missed going to Jalisco's today.  With my sour mood they probably do not miss me in the least.  I did tell one of them how bad things are but not a word today on how I am.  Perfecto!!  )-;

    I noticed a mushroom in my yard yesterday & today it is huge.  I took photos of it.

    My day has been spent watching fútbol.  The first match was actually in Kansas City Kansas. Cool.  Friends were there probably to celebrate their son's.  They shared videos of being there.  That match was the US & Uruguay.  Ended with no score.  Now watching Mexico & Ecuador in Chicago.  No score yet.  At least I can watch in the tv.  I miss my Wichita team.  Those days are gone.  Hope the local college has a good season.

    Have not dared to drive down my drive to see how bad it is looking.  I may be home until the rain quits.  Rain forecast all week.

    Photos today are all of churches.  I took 2 of the photos & edited in an app I like.  And a photo of my mushroom.  I took the 4th & 6th photos.

                    










Saturday, June 4, 2022

04 june, 2022 Wandering

    Decided I might as well blog early today.  Nothing more will happen tonight.  I hope!

    I watched a large area of rain last night.  It went from Nebraska down through Oklahoma.  When it got sort of close to here, it was mostly gone.  I finally went to sleep after that.  Then later I heard it rain.  Where did that come from???  It rained more than I imagined.  My rain gauge had 2.5" in it.  And my driveway was under water.  Looked quite deep from my porch.  I waited until after lunch then I decided it was taking its time to go down & no change in it.  I was supposed to work at the SVAFC  from 3-5pm.  I wanted to make sure they had time to find a replacement.  I took a nap and looked again.  Driveway is clear but the pasture is still full of water so I am sure water is still running under my drive.  I cannot tell if more of it was washed away.  Will check tomorrow.  If I can get out.  Missed work and Jalisco's today.

    A bit warmer today.  It is 80F right now.  And humid out.  With all the rain, of course.  The fur kids & I are all lazy.  Nico was up briefly & now asleep.  Cinder has to get up on the porch railing where I am leaning against.  Then I can rub her & she likes to touch noses with me.  Sweet girl.

    There is a couple of things I wanted to write about & have thought better of it.  Whining is ugly!!

    My photos today are a mix & they all have been edited by me.  I used an app I rarely use.  Has some cool settings!

                        










                

    

Friday, June 3, 2022

03 june, 2022 Wandering

    So far a better day.  I had plans but decided not to do them.  Tomorrow will be fine. 

    Very nice weather.  Pleasant temps.  Not too warm nor cold.  And no wind or rain.  Yet.  Storms in eastern Colorado now that might reach the middle of Kansas by tomorrow morning.  And again sunday night again.  I have no complaints about moisture.  Been a long time with nothing.

    My nephew's wife AN texted me with photos of their kids in each a kayak on the pond by my house!  How fun!!  Need to see them when I do not have Nico with me but do have my phone.  Cool to have a photo or two!

     I slept pretty good last night just took a me awhile to fall asleep.  I took an extra long nap today.  Not tired just depressed.  Worse than normal.  Feel ok now.  No real pain today.  But with several cold fronts moving through here, that might change.  There is always something.

    Yesterday I saw 4 turkey vultures and even heard a Bobwhite quail.  I love them.  They song sounds like "bob....white'.  I read that where the quail nest, the males who have no mate sit around the edges & sing to remind the females they are there if something happens to their partner.  Sort of a sad song then.

    I have a new favorite group I belong to called Coffee & Rain.  The coolest photos.  Searched some free photos & found several about the same.  Those are my photos today.  I am not a big coffee drinker since I would have to drink alone.  But in Sweden that was almost all I drank.  Be fun to have a coffee group to be with.  I did years ago but no more.  I am ok with being just me.  Don't have a choice.

                








09/2025 - Jueves the 11th - MY JOURNEY

  Today's Name Day:   Dagny, Helny     Not much to say today.  Home alone with little communication with the outside world,  Email from ...