Showing posts with label Sjögren’s. Show all posts
Showing posts with label Sjögren’s. Show all posts

Thursday, July 23, 2026

07/2026 - Thursday the 23nd - MY JOURNEY

 






Today's Name Day:  Emma , Emmy
I had a nurse boss at the hospital named Emma.  I will always be grateful to her for her support when my son needed several surgeries on his eyes in Kansas City.  Several of my coworkers accused me behind my back of lying & faking.  I have gone a long long time without support from others.  They lady who drew my blood yesterday was named Emme.  I like that name.   I a girl in school named Emma.


    Today is ok.  Still pain when I walk.  Both hands/wrists started hurting over night.  Happens at night often.  Maybe holding my phone causes some of it,
    Had rain overnight.  One crash of thunder woke me up.  Got 0.68 inches of rain.  More forecast for later.
    MM & I have chatted.  No one else has asked how I am.  There is a birthday celebration outside after 5pm today.  I pretty much told them I was not going.  I hate being outside with bugs, humidity, possible rain, & continued pain.  No one understood but tried to talk me out of not being there.  Not heard anything from anyone.  Only MM.  And he always asks if I need anything.  Almost the only one who does.  KN does also.  Others who should never ever do.  Ignored & forgotten.  I cannot give enough to get support.  😔
    Kids stayed close last night.  Daisy was loving today.
    I ordered some plastic lids for liquid canned drinks.  They fit my orange soda cans perfectly.  My V8 Energy drink not at all.  If I put a thin piece of tissue paper on the can then the lid they ALMOST fit.  They look the same.
    My Sjögrens is bothering me.  My skin itches sooo much.  Then I remembered I have some lotion that makes my skin feel good but also stops the itch.  My back is the worst.. Used it last night in bed.  Oh, it feels so nice.
    Today is a day of rest.  Offered to take JR to see the big steam engine in Salina.  He said no.  At least I offered.
    Cool out today.  Have some heat on but think I can turn it off.  Will nap on the sofa or bed.
    Hope my knee is better tomorrow but if I feel shaky doing basement steps I am staying home.  Scares me.  And hope all understand, even if they say nothing.  I have to fight down my guilt.
    More tomorrow.























                                                                         











               
    




Wednesday, August 25, 2021

Wandering Through Life, 25 august 2021

    Had a very good day.  It was a work day.  I love the old photos.  A while ago our server died a noble death.  So today I started over because we know we will have to redo many already done.  That is ok.  I still like it.

    I am enjoying getting to know our new director.  I do not get to see her often but she is friendly and tries to include me in things.

    It was very hot again.  Over 100F.  Ick.  Just now I took Nico out and almost passed out.  The air is so heavy I could hardly breathe.  Humidity is around 70%.  Miserable.

    Supper with my brother and our friend PM. Good memories.  JS tried to help me with my phone but it will wait until next week.  Long chat with NM, new waiter. Good meal.

    Tomorrow Nico gets his nails clipped.  LONG overdue.  Awful.  I cannot wait.

    More summer photos tonight.    
















 

Tuesday, August 24, 2021

Wandering Through Life, 24 august 2021

 Home alone today.  But not a bad day.  I found a new form for surviving being home most of the time.  Not that bad yet but the form has made a difference in my life.  Good!!  I wander around with no guidance but this one helps.  Plus I did another candle and intention tonight asking for more help.  Hope it works.


I washed my hair so Nico goes into hiding.  Ahhhh.  Peace.  He hates my hair dryer.  Need to plug it in more often.  Like when I have mail to open.  Soooo mean.  (-;


I think I will continue to write my blog on my iPad.  Much easier than my laptop and easier to post.  I used to post it on 2 places besides my blog app.  But no one from that one place ever reads or even looks at it.  Sometimes I wonder why I bother posting on my FB.  It is mostly ignored.  I know I can share something and get few comments or likes.  Someone else will post it and people go crazy.  So I sort of avoid posting much.  I like a lot and read a lot but do not share much anymore.


Work tomorrow.  Has been a group here in town filming things and have been to where I work twice.  Thank goodness I was not there.  Do not want to see me on tv.  Not a pretty Sight!! (Joking)


Very hot today.  Heard 101F.  Same every day until the weekend.  Oh joy!!  Need a road trip far north of here!!  Or the Rockie Mountains!!  I dream big.  Won’t go anywhere.


Photos are more summer flowers.
















    

07/2026 - Wednesday the 29th - MY JOURNEYhis i

  This is about my town.  We are very swedish. Today's Name Day:   Olof , Olle      Today was a good day.  Out of the house & worke...